Parkinson's Network Providing Support Services in Leicestershire & Rutland
This website has been created for and by people living with Parkinson's in Leicestershire and Rutland. The local groups which form the hub of the network are all run by volunteers and supported by Parkinson's UK staff.
We aim to provide signposts for those people living with Parkinson's, their family, and friends to activities across both counties as well as information and new initiatives on Parkinson's.
The network provides alongside this website a quarterly Newsletter.
WORLD PARKINSON'S DAY 11 APRIL 2024
We know how effective and persuasive petitions can be so if you agree with the charter’s principles please sign the petition and please PLEASE urge family and friends, healthcare professionals, everyone who cares about Parkinson’s, to sign it as well.
More information is available on Parkinson's UK's website, and this is a direct link to the Parky Charter petition. Please sign if you agree with the Principles, and share, far and wide.
A message from The Movers and Shakers
We know many of you listen to the Award-winning Movers & Shakers podcast featuring Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Nick Mostyn and Jeremy Paxman.
Although we manage to joke about the condition, Parkinson’s is not an easy illness to tolerate and we, the Movers and Shakers, have been both moved and shaken by what our listeners have told us. As a result we have come up with a Parky Charter - a list of things all Parkies should have a right to expect from a functioning health service and a caring care system. We now have the chance to take the Charter to 10 Downing Street on World Parkinson’s Day (April 11th).
Parkinson’s UK, Cure Parkinson’s and Spotlight Young Onset PD, support the principles of the Charter and are promoting it wherever they can. We also know more now how effective and persuasive petitions can be so if you agree with the Charter’s principles please sign the attached petition and please, please urge family and friends, healthcare professionals, everyone who cares about Parkinson’s, to sign it as well. The more people who can sign it before World Parkinson’s Day the impact it will have.
Thankyou
Paul Mayhew-Archer
World Parkinson’s Day - 11 April - not long to go!
World Parkinson’s Day is just around the corner, and many of you are busy promoting and planning your events, light ups and fundraisers. Thank you to everyone for your fantastic efforts and involvement so far.
Plan to Bake it blue? Our President Jane Asher has kindly shared some World Parkinson’s Day bakes.
We’d love to hear more about your activities, and do keep an eye on our social media, website, and Assemble too for the World Parkinson’s Day highlights.
WALK FOR PARKINSON'S IS BACK FOR 2024 - OUR LOCAL WALK
WALK FOR PARKINSON'S THIS YEAR IS AT CHATSWORTH HOUSE 30 JUNE 2024
Our Walk for Parkinson's series is back for 2024. We will be at Chatsworth House on Sunday 30th June. There will be two routes available for our wonderful walkers, a 2.5 mile accessible route and a more challenging 6 mile route. All funds raised from the walk series will go towards our vital research into new treatments and a cure.
How can groups get involved? Last year we had just over 250 walkers. Many of whom are new to Parkinson's UK. You are welcome to attend the walk as a group to promote what you do - this may encourage new members. Another way you can support the walk is by promoting the walk. Please let family and friends know about the walk. It really is a wonderful day out for all the family. Under 18s are FREE and adults are £12. For this you get entry to the walk, a t-shirt and medal. Should anyone wish to volunteer at the walk we also have some fantastic opportunities to be part of our awesome events team on the day.
To find out more information and to sign up please visit events.parkinsons.org.uk/walkchatsworthhouse or email Katie or Hannah for more information
kthomas@parkinsons.org.uk
hscammell@parkinsons.org.uk
GET ACTIVE IN 2024
Katie Smith (Area Development Manager) would love to hear your thoughts on what physical activity. What would you like to see developed in 2024, and are there any areas of our county that you think are underserved for activity opportunities?
From Accessible Football to Zumba- what would you like to see developed, to help you live well?
Any thoughts you would like to share would be most appreciated. It would be great to have your voice helping to inform our local plan for 2024.
I want to make sure that I meeting your needs; developing the support you would like to see- and most importantly where you want to see it!
It would also be great to hear from you if you attend any exercise classes or activity sessions locally that you love! What are you enjoying the most, and what is it that keeps you coming back.
Drop me a note on kabsmith@parkinsons.org.uk or give me ring to chat on 0344 225 9863
Movers sand Shakers Podcast by celebrities who have Parkinson's, Issues each week on Apple, Spotify and the leading sources of Podcasts. They discuss and quiz professionals on a related topic each time - diet, exercise, consultants, Handling the news. They even did a podcast from the Parkinson's
Parkinson's UK Information
Parkinson's UK Advisors
Parkinson's Nurses
Parkinson's UK Membership
Fitness Groups
Keeping physical fit and exercise are proven ways to delay the progression of Parkinson's, there are a number of groups across the county which offer the opportunity to engage in regular exercise design for those with Parkinson's
Click here for details
Volunteer Opportunities
We have some fantastic opportunities to volunteer in our area, volunteering is a great way to get to know people while making a positive difference to people affected by Parkinson's.
If you are interested in any of the roles please contact us on
contact@leicesterparkinsons.org.uk or jconn@parkinsons.org.uk
IF YOU HAVE AN URGENT NEED FOR HELP OR SUPPORT
PLEASE CONTACT THE CONFIDENTIAL NATIONAL HELPLINE ON 0808 800 0303
OR EMAIL hello@parkinsons.org.uk